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 Five autoimmune diseases can't stop this survivor 

Five autoimmune diseases can't stop this survivor

09 May, 2009 05:00 AM
WHEN Sheryl Speers was diagnosed with the autoimmune disease scleroderma she was given between 18 months and five years to live. That was 12 years ago.

She had suffered five years of symptoms before receiving the news in 1997. Mrs Speers credits her subsequent survival to her own "stubbornness" and the assistance of the Autoimmune Resource and Research Centre at John Hunter Hospital, which recently celebrated its 20th birthday, and to its director Associate Professor Glenn Reeves.

Mrs Speers said it was not just Professor Reeves' medical expertise but his willingness to listen to his patients that she credits with her survival. "He has saved my life," she said.

Scleroderma patients overproduce collagen which causes parts of the body, including the skin and internal organs, to harden.

Mrs Speers, of Merewether, also has four other autoimmune diseases including lupus and has spent periods in a wheelchair.

Her condition is affected by the cold, extreme heat, stress and UV light, making things most people take for granted difficult.

Not only does she need to rug up in warm clothes in the middle of summer to do her grocery shopping because the freezer section can set off an attack, but she also has to endure stares from the public.

"People can be really, really cruel and they never bother to ask if you're OK," her husband Seamus said.

The 52-year-old also finds it difficult to digest food, often being limited to soup, and is easily fatigued.

But Mrs Speers said what upset her the most was that she was not able to watch her 17-year-old son Liam, who is an Australian champion discus thrower, compete.

But Liam said he understands and was just happy to talk to his mum on the phone after a meet.

And despite the limits the disease has placed on her life, Mrs Speers said it has also given her many insights.

"I've had to give up a lot but it has given me a lot of wisdom," she said.

"I focus on what I can do, not what I can't do."

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Mrs Speers is a champion to handle her life in such a positive way! She is truly an inspiration of how the spirit can overcome. So few people understand that many illnesses today are Autoimmune Disease ..Diabetes/Arthrits/Meniere's/Cro hn's.....the list goes on....nor do they understand that there is not one cure or even an effective treatment for the 100 Autoimmune diseases people can suffer. Autoimmune Disease is a new modern day epidemic we are all facing. Autoimmune disease is the body's Immune system turning on any part of the body and destroying it. Nobody in the world yet understands it..it ranks alongside Cancer as one of the hardest things to fix..I pray that an answer comes soon.
Posted by jim, 9/05/2009 4:05:40 PM
I especially agree with Seamus Speers and his opinion on some members of the General Public being rude when you have a Disability. Unforunately people are frequently rude. I've had bus drivers have to forcefully tell mothers with toddlers they cant take the front Disabled seat off me. (No they weren't pregnant). I've received everything from filthy looks to abuse when Lawfully using my Disabled parking permit from drivers who dont have one and wanted the space. I've had people shove, barge and push past me in the Supermarket, Bank, Crowded places when using my cane, all the while muttering and shooting me dirty looks as if to say "How dare you slow down MY progress!"and I've seen them do exactly the SAME thing to other Disabled people of all ages. I've had some people not ask but rudely demand whats wrong with me. Not long ago I gained a great deal of weight due to the Medication I was taking and I have to say the treatment was much worse. I had a bad fall caused by a woman barging past me and did she stop? No. Did anyone Help? Yes. One kind lady of about 60 with a CANE did! The next week I demanded a Meds change and the weight started to fall of and was gone in a few months. I've only had my Physical Disability for just on 5 years and I'm learning to stick up for myself as a Disabled Person. So if you're a stanger and ask what's "wrong" with me you're going to be politely but curtly told that there is nothing "wrong" with me but my Disability is None of your Business. Try and rudely shove past me in a crowded place when you can see I have a Mobility Aid and you are going to hear a loud, firm but polite "um EXCUSE me!" (I find it works wonderfully. The offender looks stunned as they snap out of their little world and see me) and as for Disabled seating and parking? They are called that for a reason. They are for Disabled people. The seats on busses are not for Folded prams or able-bodied people who dont want to walk 10 extra steps to the next seat. And the parking is not for parents with PRAMS, lazy shoppers who don't want to walk and those who class Laziness as a Disability. So Mrs Speers, hold your head high and proud. Ignore the rude and the Ignorant looks. People like that are not worth your notice or time.
Posted by Disabled and Proud, 9/05/2009 7:01:06 PM
I'm sorry for everthing
Posted by sharon, 2/07/2009 9:10:37 PM

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 ALIVE: Sheryl Speers, of Merewether, has autoimmune diseases but attributes her survival to medical care and stubbornness.- Picture by Dean Osland
ALIVE: Sheryl Speers, of Merewether, has autoimmune diseases but attributes her survival to medical care and stubbornness.- Picture by Dean Osland

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