WHEN Sheryl Speers was diagnosed with the autoimmune disease scleroderma she was given between 18 months and five years to live. That was 12 years ago.
She had suffered five years of symptoms before receiving the news in 1997. Mrs Speers credits her subsequent survival to her own "stubbornness" and the assistance of the Autoimmune Resource and Research Centre at John Hunter Hospital, which recently celebrated its 20th birthday, and to its director Associate Professor Glenn Reeves.
Mrs Speers said it was not just Professor Reeves' medical expertise but his willingness to listen to his patients that she credits with her survival. "He has saved my life," she said.
Scleroderma patients overproduce collagen which causes parts of the body, including the skin and internal organs, to harden.
Mrs Speers, of Merewether, also has four other autoimmune diseases including lupus and has spent periods in a wheelchair.
Her condition is affected by the cold, extreme heat, stress and UV light, making things most people take for granted difficult.
Not only does she need to rug up in warm clothes in the middle of summer to do her grocery shopping because the freezer section can set off an attack, but she also has to endure stares from the public.
"People can be really, really cruel and they never bother to ask if you're OK," her husband Seamus said.
The 52-year-old also finds it difficult to digest food, often being limited to soup, and is easily fatigued.
But Mrs Speers said what upset her the most was that she was not able to watch her 17-year-old son Liam, who is an Australian champion discus thrower, compete.
But Liam said he understands and was just happy to talk to his mum on the phone after a meet.
And despite the limits the disease has placed on her life, Mrs Speers said it has also given her many insights.
"I've had to give up a lot but it has given me a lot of wisdom," she said.
"I focus on what I can do, not what I can't do."