Home-based palliative care grant for terminally ill infants and children gives families "One Less Worry"

Precious: Medowie's Kellie Wall with son Braith, 10, who may access a loan pool of palliative care equipment for their home if the time comes. Picture: Max Mason-Hubers
Precious: Medowie's Kellie Wall with son Braith, 10, who may access a loan pool of palliative care equipment for their home if the time comes. Picture: Max Mason-Hubers

WHILE preparing to say goodbye to a loved one will never be easy, a “loan pool” of medical equipment for children with palliative care needs is at least making the process a little bit better.

One Less Worry is giving terminally ill children access to equipment to help them spend their final days at home with their family and friends, instead of a hospital.

Kellie Wall, whose 10-year-old son Braith has cerebral palsy and a seizure disorder, said the initiative – which received a $77,000 funding boost from Newcastle Permanent Charitable Foundation, would make it easier for families to spend those last precious moments together at home.

“Having that money there, and being able to get the equipment straight away, is wonderful – because these kids are running out of time fast,” Mrs Wall said.

One Less Worry, Australia’s first dedicated loan pool of medical equipment for children with palliative care needs wanting to spend more time at home, was established by The Nicholas Trust, Hunter New England Health, and Newcastle Permanent Charitable Foundation in October.

The loan pool is now almost complete, and includes oxygen tanks, special medical mattresses, wheelchairs, and pulse readers.